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You would think that a 12-year-old
who's missing parts of two limbs would be afraid to participate
in a martial arts class, let alone join her classmates on
stage at The Bushnell.
And you would probably expect a 10-year-old
who's just undergone a blood transfusion to sit out his
African percussion class the next day.
Or you might think it perfectly reasonable
for a dance instructor to set up a special class for students
prone to pain, fatigue and infections.
But thanks to a special arts program
for kids with sickle cell disease, assumptions like these
are being blown away every Wednesday and Saturday at the
Artists Collective in Hartford.
Now entering its third year, this collaborative
effort with the Sickle Cell Service at Saint Francis
Hospital and Medical Center proves that having
this lifelong disease doesn't mean missing out on activities
that should be a normal part of growing up.
It doesn't mean being afraid to try ...
or succumbing to pain and fatigue ... or limiting your horizons.
Indeed, judging from the experiences
of those who have participated, activities once thought
to worsen the symptoms actually have a therapeutic effect.
But the benefits don't stop there.
The creative movement class teaches 2-to
5-year-olds balance and coordination. Martial arts shows
5-to 18-year-olds how to breathe, meditate and concentrate.
The African rhythm class sharpens hand/eye coordination.
And every class imparts a strong sense of self-esteem in
kids who once had very little.
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As Valencia Dixson puts it, "Martial
arts shows me that I can do everything like other people
and I don't have any limitations." She proved
that assertion to dance instructor, Cheryl Smith, her first
night at class.
"I'll never forget when Valencia
arrived with her tap shoes on," Ms. Smith recalls.
"I showed her one step and she gave it right back to
me."
Welling up with tears, Ms. Smith asked
Valencia if she could tell the class that she lost part
of an arm and leg due to infection. The youngster
agreed, but made it clear she wanted no special treatment
after that.
Valencia got her wish - one that she
shares with the rest of the sickle cell students who, while
blending in with their peers, nevertheless remain under
the watchful eye of Dr. Lee Pachter, director of the Sickle
Cell Service at Saint Francis.
"This program has been a godsend,"
he says. "The kids are in better physical and emotional
health than other sickle cell patients. The classes empower
them to take control of their illness and their lives."
Though survival rates have vastly improved,
there's still no cure for sickle cell disease. But don't
tell that to the kids at the Artists Collective. Because
they've kicked the stuffing out of their worst enemy yet:
fear.
Donations to the Sickle Cell Program can be
made to the Saint Francis Foundation / Sickle Cell Program,
114 Woodland St., Hartford CT 06105. For additional information,
please call the foundation at 860-714-4900.
Please direct your comments to Dr. David D'Eramo, President
and Chief Executive Officer, Saint Francis Care.
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